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Linnette-Stefan Linnette-Stefan 5 years
Dear Michelle I know that intentions are good, but in regard to the title of this article, I feel I need to speak on behalf of the women with breast cancer whose voices and stories are rarely heard. These women, myself included, have Stage IV/metastatic breast cancer and there is nothing "rosy” about it. While we know the importance of awareness and early intervention, as well as the uncountable lives that the color pink and its campaigns have touched, those of us with metastatic breast cancer often feel very isolated, given up on, and even hidden behind the pink ribbon. We can not contribute to the survivor stories with happy endings. We are not survivors, we are warriors. We fight tirelessly for more time with loved ones, but know that with every new treatment we try, hoping it is one that works, it is one less in our arsenal. Eventually we will have exhausted all of our options and the battle will be lost. Last October House Resolution Bill 787 was passed but I doubt most people in our nation know that H.R. Bill 787 designates October 13th as National Metastatic Breast Cancer Awareness Day. There is a lack of knowledge and many misconceptions about Stage IV breast cancer. The bottom line is there is no Stage V. Those of us fighting desperately against a disease that will ultimately claim our lives do not want to be warriors, we want to be survivors. We want to be cured!!! I am not in anyway suggesting we abandon the pink ribbon campaign, but it is time to take off the "rose" colored glasses. With less than 1% of breast cancer research funding spent on metastatic research (i.e. possible live saving treatments), we don’t have a fighting chance. Sincerely, Warrior Linnette Stefan
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