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Parents of Disabled Girl Fight for a Kidney Transplant

Parents of Disabled Girl Fight for a Kidney Transplant

Our hearts go out to the Rivera family in Philadelphia. After meeting with some initial resistance, they are now in talks with Children's Hospital of Philadelphia (CHOP) over a kidney transplant their 3-year-old daughter needs to survive.

The Huffington Post explains that the hospital's reluctance is about weighing factors "such as life expectancy and health conditions, before placing anyone on organ waiting lists." The Rivera's daughter, Amelia, has a rare disability called Wolf-Hirschhorn Syndrome, which caused mental retardation and created the conditions for kidney failure. The doctor who discovered Wolf-Hirschhorn says that while a transplant will prolong Amelia's life, it will not save her.

Though the Riveras have volunteered to find their own organ donor, Amelia's mom, Chrissy, blogged on January 12th that the hospital still informed them that they would not be willing to perform the surgery on their daughter "because of her mental delays." The hospital says that this is not true, and, as CBS News reports, Rivera has since "declined to comment further, saying she likes CHOP and is still hoping for a happy ending in her daughter’s case."

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Many parents and bloggers have signed a petition demanding that the hospital relent, and it now includes over 21,000 signatures. On Monday the hospital contacted the Rivera family to talk about the surgery again.

Read the whole story (Huffington Post)

Image Source: via Huffington Post

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