Why This Mom Is on a Mission to Photograph Children With Rare Genetic Diseases

"Madison has severe global developmental delays with slow motor and cognitive gains. She can not say one word, is not independently mobile, can not crawl, and has no protective reflexes. She suffers from seizures and a sleep disorder. In her mid to late teen, Madison will suffer from Dystonia, Dementia, Parkinsonism and loss of vision." — Jennifer Greene